November 2023: Engage Britain has now merged with Demos. You can still find all our work from 2019-2023 here, but to get in touch or find out about our new ventures, go to https://demos.co.uk/

Health and Care Matters
In-depth: My experiences of providing care

In 2021, around 700 people across Britain took part in online conversations to talk about their experiences of health and care. Here’s what people working (paid and unpaid) in health or care said about their experiences.

  • Staff and carers feel overstretched, undervalued and taken for granted
  • Health and care staff need more time to do their jobs justice
  • Carers shared having to go into debt and staff shared concerns about pay
  • Staff and carers are negatively affected by disjoints and gaps in the systems.

Read more

The experiences of people who work in health or care, or provide unpaid care

The preview image for embedded YouTube video titled
Sherrie
“When I was a carer, and my husband sadly died a few years back, I found respite was non-existent. Previously, it was there. Not much, but it was there. But non-existent at the end, when I twice needed major surgery. There just wasn’t any help.”
The preview image for embedded YouTube video titled

Do you have something to say on this topic? There’s a number of ways you can get involved, from submitting quick 2 minute answers to sharing your story on video.

“I would like to feel that my son would never, ever have to be so conflicted”
Read Allie’s story

We share people’s experiences because we want people making decisions to hear from people who live with those decisions every day. But we know some of this experiential content can be difficult to watch. If you’ve been affected by anything you’ve seen, heard or read here please consider getting in touch with these organisations that can help.

To help preserve people’s anonymity, real names haven’t been used on quotes.