November 2023: Engage Britain has now merged with Demos. You can still find all our work from 2019-2023 here, but to get in touch or find out about our new ventures, go to https://demos.co.uk/
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Health and Care Matters
I didn’t know where to turn
In 2021, around 700 people across Britain took part in online conversations to talk about their experiences of health and care. Here’s what they said about not knowing where to turn.
Many people report struggling to know where to turn for health and care support
People often have to fight to get the help they need
The public, and particularly health and care workers, worry about the lack of continuity in care
“We [the ambulance service] take less than 50% of our patients anywhere. A lot of the time we’re dealing with patients in their own homes, and it’s about navigating the system for them and putting them in touch with the right person to help them. Whether that’s referring them back…read more
“It really worries me that if you’re not energetic, articulate and determined – and at times forceful. If you can’t advocate or have someone else advocate for what you need, then you’re just left to fall between the cracks.”
“It’s knowing where to go and getting into the system. When my dad got dementia and he couldn’t be at home because my stepmother just couldn’t cope with him, to get him in a care home and to get him fully funded was a complete nightmare. You’re dealing with so…read more
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I can relate to this
Jill
“If you can’t advocate for yourself, you don’t get adequate health care. And that’s as brief as I can put it.”
Do you have something to say on this topic? There’s a number of ways you can get involved, from submitting quick 2 minute answers to sharing your story on video.
We share people’s experiences because we want people making decisions to hear from people who live with those decisions every day. But we know some of this experiential content can be difficult to watch. If you’ve been affected by anything you’ve seen, heard or read here please consider getting in touch with these organisations that can help.
To help preserve people’s anonymity, real names haven’t been used on quotes.
