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Health and Care Matters
I didn’t know where to turn

In 2021, around 700 people across Britain took part in online conversations to talk about their experiences of health and care. Here’s what they said about not knowing where to turn.

  • Many people report struggling to know where to turn for health and care support
  • People often have to fight to get the help they need
  • The public, and particularly health and care workers, worry about the lack of continuity in care
  • People fall through the cracks in the system.

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People’s experiences of not knowing where to turn

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“It really worries me that if you’re not energetic, articulate and determined – and at times forceful. If you can’t advocate or have someone else advocate for what you need, then you’re just left to fall between the cracks.”
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“If you can’t advocate for yourself, you don’t get adequate health care. And that’s as brief as I can put it.”

Do you have something to say on this topic? There’s a number of ways you can get involved, from submitting quick 2 minute answers to sharing your story on video.

We share people’s experiences because we want people making decisions to hear from people who live with those decisions every day. But we know some of this experiential content can be difficult to watch. If you’ve been affected by anything you’ve seen, heard or read here please consider getting in touch with these organisations that can help.

To help preserve people’s anonymity, real names haven’t been used on quotes.