Health and Care Matters
In depth: My experiences with a long term condition

In 2021, nearly 700 people across Britain took part in online conversations to talk about their experiences of health and care. Here’s what people with long term conditions said about their experiences.

  • People with long term physical and mental health conditions are often not listened to or believed by doctors
  • Long waiting times, and having to start from scratch with their care over and over, takes a real toll on everyday life and mental health
  • People want to be treated more holistically and see physical and mental health conditions joined up
  • The right support provided by a single health or care worker can transform someone’s life.

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People with a long term condition’s experiences of health and care

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Do you have something to say on this topic? There’s a number of ways to get involved, from submitting quick 2 minute answers to sharing your story on video.

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We share people’s experiences because we want people making decisions to hear from people who live with those decisions every day. But we know some of this experiential content can be difficult to watch. If you’ve been affected by anything you’ve seen, heard or read here please consider getting in touch with these organisations that can help.

To help preserve people’s anonymity, real names haven’t been used on quotes.