Health and Care Matters
In depth: My experiences with Disability
image of man in wheelchair

In 2021, nearly 700 people across Britain took part in online conversations to talk about their experiences of health and care. Here’s what Disabled people, neurodiverse people and their loved ones said about their experiences.

  • Disabled people, neurodiverse people and their loved ones feel treated like second class citizens
  • It is possible to get support but often it is a struggle
  • People go unsupported if they do not have someone that is able to help them explore, request and challenge care provision
  • Disabled and neurodiverse people want a level of support that will allow them to have things others take for granted, like a social life
  • The health and care systems are disconnected and constantly firefighting crises, which stops Disabled and neurodiverse people getting the long-term support they need. Read more

Disabled people, neurodiverse people and their loved ones’ experiences with health and care

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Pat
“My general experience of social care is misunderstandings. They’re trying to put me into a box which I don’t fit in, or they can’t fit me in a box because there isn’t one.”
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Do you have something to say on this topic? There’s a number of ways you can get involved, from submitting quick 2 minute answers to sharing your story by video.

“Where do we actually sit on the priority list? Probably the bottom”
Read Karen’s story
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We share people’s experiences because we want people making decisions to hear from people who live with those decisions every day. But we know some of this experiential content can be difficult to watch. If you’ve been affected by anything you’ve seen, heard or read here please consider getting in touch with these organisations that can help.

To help preserve people’s anonymity, real names haven’t been used on quotes.