Articles
"It really worries me that if you're not energetic, articulate and determined - and at times forceful. If you can’t advocate or have someone else advocate for what you need, then you're just left to fall between the cracks."
"It's knowing where to go and getting into the system. When my dad got dementia and he couldn't be at home because my stepmother just couldn't cope with him, to get him in a care home and to get him fully funded was a complete nightmare. You're dealing with so...read more
"The main communication we got was our letter about Community Care charges. Rather than a text or a call or a letter saying, 'How are you?' there was no 'How are you?' Or 'Are you?' even. 'Are you alive or dead?' You know, there was no compassion shown. It's very disappointing to...read more
"I'm a mum of a 17 year old young lady who has had mental health issues. She has really struggled and to be honest, we've had to get her the support that she needed through private support. She has a private psychotherapist because we couldn't get the care that she...read more
"The doctors and the “experts”, you know, you go into a doctor's surgery and you say 'I need help with something' and they just kind of shove you off in a completely different direction. I've spent years and years and years trying to get diagnosed with this disease. And it took...read more
"I know in the surgeries they’ve got accessibility standards, but they’re not used. Everybody should be going back to the doctors if they're not using it. And that's a big issue. For people with learning disabilities like me, who can't read very well. "
