November 2023: Engage Britain has now merged with Demos. You can still find all our work from 2019-2023 here, but to get in touch or find out about our new ventures, go to https://demos.co.uk/
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Health and Care Matters
I was neglected or dismissed
In 2021, around 700 people across Britain took part in online conversations to talk about their experiences of health and care. Here’s what they said about being neglected or dismissed.
Lots of people feel dismissed, not taken seriously or not listened to
This is particularly felt by people from specific backgrounds or with lesser-known conditions
Some experience poor quality care. Others have treatments not administered properly
This is often put down to NHS and social care staff being under huge pressure
How well you articulate yourself directly affects the quality of the care you get
Sometimes you have to fight to get the care you need. Read more
People’s experiences of being ignored or dismissed
“Another time talking therapy was arranged by my work, and I went there. This was after my husband passed away. And the person fell asleep.”
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I can relate to this
Kirsty
“There needs to be a conversation about how we use [the] proliferation of information on the internet. Because it can increase people’s anxiety about their health issues. What do we do with all this information? It can be really confusing [and] really stressful. And then [you] go to the doctor who patronises…read more
“[I’ve] a couple of family members with dementia. And you know there’s something wrong with your relative. And it was so hard to get the help. And I just felt like they weren’t…nobody was listening to me. And it was getting dangerous. My uncle was wandering. He was stood in the middle of a…read more
“The people that I support have been finding it really difficult to get healthcare simply because they couldn’t speak the language. So I’ll give a scenario where a couple went to hospital to reverse an operation that took place in their home country. They wanted to have kids but instead…read more
Do you have something to say on this topic? There’s a number of ways you can get involved, from submitting quick 2 minute answers to sharing your story on video.
“We got a call that Dad had ingested bleach tablets used to wash the floors”
We share people’s experiences because we want people making decisions to hear from people who live with those decisions every day. But we know some of this experiential content can be difficult to watch. If you’ve been affected by anything you’ve seen, heard or read here please consider getting in touch with these organisations that can help.
To help preserve people’s anonymity, real names haven’t been used on quotes.
