I was neglected or dismissed
"There was a time a few years ago when I had some scans because of this lump in my neck. And basically for two weeks [I was] thinking I was gonna die. And then he was just like 'Oh no, it's just a cyst.' But at no point before...did they kind of...read more
"I had a car accident, about 20 years ago, which really damaged my spine. And I got support from my GP. But after about three years of struggling, his answer was to give up work and go on disability... I didn't get offered any rehab
I felt like I was just...read more
"CAMHS have actually made life much more difficult for us
They actually have aggravated every thing that [they] were supposed to help with. Their services are so poor."
"The home that I work in is a private care home. So I only have first-hand experience of that. But, for me, it's the quality and the amount of care that's received in private care homes, where people are paying probably an average of about £1,500 per week to stay there. Versus what they're actually getting,...read more
"I remember in hospital on my medical notes [it said] this patient needs help to do basic needs...[But] the nurses who were looking after me, when I'd ask them for certain things they would look at me like 'Well, just get up and do it.' I mean, one got to the...read more
"I had a sister who was in a care home. As soon as you walked in, you could smell things that you shouldn't have. And it wasn't her fault. I mean...she did actually [get a] room for herself, but others were put together. And it's never been anything like the standard of...read more
"Our daughter has autism, severe anxiety and PTSD. She's currently in a low secure unit. We saw her yesterday for the first time since Christmas Day because of lockdown. Social Care are just awful, the way they treat us. They don't involve us. They don't follow through on their promises....read more
"When I got unwell, the GP actually said to me 'You have no reason to be depressed. You have food, you have a roof over your head, you have no reason to be depressed.' It's like okay, well, there's no point in me being here. I'm just gonna go and...read more
"We've had 32 or 34 different carers come from the same agency. And, no, there's no liaising. There's no communication... it's all over the place. "
"When you get people who go above and beyond patient care, the way they talk to you is respectable...It really does highlight when there's other times where people are less appropriate when they talk to you about certain things."
"He got sent home to us without any conversations between us and the hospital. And without any care package being put in place for him. And that was just so very, very difficult to sort out at short notice, to get people in. And it really needed us, in the end, for...read more