Posts
"It's miscommunication. I could paper my house with hospital letters that say utter jibberish. And when I see letters that have been sent to my GP about things I'm supposed to have said or been diagnosed with, or conversations that we had. Honestly, it's quite scary because then the next time you go to see anybody, they're...read more
"If you can't advocate for yourself, you don't get adequate health care. And that's as brief as I can put it."
"I knew when I ovulated because it felt like my actual stomach had exploded. But they still made out that it was all in my head. After a year of doing this, they got me onto antidepressants. They convinced me that I was depressed when actually I was in chronic pain and trying to...read more
"The consultant who said to me, 'I don't know', I actually thanked him for that. I think we need to empower consultants… [to feel] it's okay not to know.They'd get a lot more respect and much better co-operation with patients. "
"He said to me, 'We will have you out of theatre with a patient controlled analgesia, because we don't think that, in no uncertain terms, will we be able to manage your pain. You need to have control of your post op pain.' And I could have hooked, kissed and held on for so long...read more
"Every department should have access to your full medical history. And I feel like the partners should be able to discuss things with each other, like your mental health specialist should be able to discuss with your endo specialist. They should all be able to speak to each other and...read more
"It's such a rare condition. It's so misunderstood. There's not enough awareness, even amongst the medical profession that I genuinely... the only time I feel heard as a patient is when I go to London and I pay the doctor to listen."
