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"A lot of people that tend to care for people with disabilites like myself are not very good at doing things like form filling. They tend to think, 'Oh, this guy he's up and about. He's quite independent.' And they forget about your other needs. And when you enquire, you don't get...read more
"Our daughter has autism, severe anxiety and PTSD. She's currently in a low secure unit. We saw her yesterday for the first time since Christmas Day because of lockdown. Social Care are just awful, the way they treat us. They don't involve us. They don't follow through on their promises....read more
"When I got unwell, the GP actually said to me 'You have no reason to be depressed. You have food, you have a roof over your head, you have no reason to be depressed.' It's like okay, well, there's no point in me being here. I'm just gonna go and...read more
"We've had 32 or 34 different carers come from the same agency. And, no, there's no liaising. There's no communication... it's all over the place. "
"When you get people who go above and beyond patient care, the way they talk to you is respectable...It really does highlight when there's other times where people are less appropriate when they talk to you about certain things."
"I was bed bound for three days. I had drains in. I wasn't allowed to sit up, get out of bed or anything. She left my tea, my trolley, at the side of my bed, put my knife and fork on my chest and just walked off and left me."
"When I started, when I was a nursing assistant doing my training, I could spend an hour one to one with my patients on the ward. And now you'd be lucky to have 10 minutes with somebody."
"When I first had my breakdown, I went to my GPs. The first GP I saw was very dismissive of me and was like, 'Look, I'll sign you off for two weeks. But everybody has stress problems...it looks like you're gonna have to really think about whether you should be working there.' "
"[When] my mother-in-law was diagnosed with cancer, she was expected to go with the treatment. Because she refused we were just kind of brushed off."
"I think what needs addressing is home care in our community. I think it's absolutely shocking... it's three or four visits of 10 to 15 minutes a time. And it's not enough, it's not practical."
"The number of people who are just absolutely desperate for a chat or something just outside of their room...some kind of support while they're in there. Extra activities or just someone to go around and talk to people. I find that, especially with elderly people, they're much more likely to get a...read more
"There was a time a few years ago when I had some scans because of this lump in my neck. And basically for two weeks [I was] thinking I was gonna die. And then he was just like 'Oh no, it's just a cyst.' But at no point before...did they kind of...read more