Articles
"I've got loads of patients where they're dealing with one thing and the next thing is falling apart. And nobody is paying attention to that because nobody joins it all together. "
"When people drop out of mental health care this shouldn't be seen as the fault of the person dropping out. It should be seen as a red flag, and the NHS should actively work towards re-engaging them."
"Hospitals should know better, we are constantly required to call for an appointment – they should be able to recognise that we are Deaf and offer alternatives, text numbers or even Centre of Sign Sight Sound’s contact details. Not simply rely on us phoning."
"There's a fear around registering with a GP. Maybe that's something we should want to change. Something guaranteeing that data stored by your surgery or the NHS doesn't get shared with the Home Office."
"You can't share any information, they don't even have access to the same systems. The NHS system doesn't talk to the council system."
"From my local council, we did get a certain amount of support, but we had to fight for it. And the thing is, when it starts off with the doctor, you need a certain amount of help. Where do we get the help from? We were pointed in the right...read more
"My mother had cataracts. She was at the point where she couldn't really see. And she was put on a year long waiting list. So she had to pay for that service in the end."
"When I was a teenager I fell pregnant with my eldest. And I've always struggled to get the support I've needed. I've always been pushed from pillar to post or have not been able to get the help because I'm not classed as severe. Because I'm not a danger to...read more
"When the first lockdown started, I was okay for a bit. But unfortunately my grandmother suffers from cognitive impairment. And she will press her little button to say, ‘I need help.’ You help her, you then go back, and a few moments later she presses the button again, and asks...read more
"I just feel frightened for those people who don't have children that look out for them. I have an aunt and uncle who both had dementia at the same time. They were estranged from their children, but we didn't really know that. And they'd been lying on the floor in...read more
"When my mother needed an operation, when she came out there was a package arranged to support her. I couldn’t actually use it because they came and hoc times. If you've got someone with dementia, you can't have people turning up at ad hoc times. We have a separate toilet...read more
"My most recent experience is with my mother. She went through a really bad patch after my dad died. It was really difficult to get them to help and support with that initially. She really reached rock bottom before the authorities came in."