Articles
"We're not being believed in healthcare. Turning up at A&E and being told that your pain can't be that bad, that you're not that unwell, made to feel like you're going mad yourself. And especially when you've got a mental health condition, you do start to really check in with yourself...read more
"We see that in the mental health system, it’s a similar situation. It isn't when somebody is really very acutely, mentally ill. The experience of the provision of care at that point is often extremely good. But as you drop down from that really acute crisis point into slightly less...read more
"A friend of mine a bit younger than me, her husband has Parkinson's which has deteriorated quite badly recently. He has been in hospital. He's currently in a nursing home but is due to return home. That house she's in, that house is unsuitable. She’s falling a lot. She's not...read more
"When I was a carer, and my husband sadly died a few years back, I found respite was non-existent. Previously, it was there. Not much, but it was there. But non-existent at the end, when I twice needed major surgery. There just wasn't any help."
"People think I’ll see my support worker, and that will be fine. That kind of mentality is not what living with a learning disability is today or even what autism does. It’s much more independent than it was even 10 years ago. People still think that people with learning disabilities...read more
"[I've] a couple of family members with dementia. And you know there's something wrong with your relative. And it was so hard to get the help. And I just felt like they weren't...nobody was listening to me. And it was getting dangerous. My uncle was wandering. He was stood in the middle of a...read more
"Two and a half years ago, I was diagnosed with bowel cancer [and] was operated on in hospital. And so my experience has been a very positive one, in terms of the quickness, in terms of the diagnosis. And then the prognosis and the treatment that was provided. The aftercare treatment has...read more
