I didn't know where to turn

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Gina
"Me and my brother didn't live near our parents, but we had to keep going in and trying to get answers. We had to keep fighting for good care and to understand the system."
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Bob
"My greatest concern is the fragmentation of services within health and social care, and the lack of any coordination. I'd really like to see somebody take on the role of managing people's care, which the GP or a key social worker used to do."
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Jennie
"Why can't we have that system for continuous social care when you need it, rather than having these instances that are just too distressing to witness? And usually at a time when the partner is also vulnerable and ageing, and they don't know where to turn."
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Hattie
"The social worker used to work with the consultant in the hospital on the ward. They used to take the decisions together and it was seamless. But now what’s happened between social care and healthcare is they’ve become separate."
Lez
"With regards to continuing health care assessments, I can only describe ours as having been traumatic. The buck passing between social services and health, the lack of accountability. These are all things that have seriously needed addressing for decades and it still hasn't happened. "