I've had worse care because of who I am
"In my area, until very recently, we had no post diagnostic support for adults with autism at all. You can go and get a diagnosis, and that will be that. You get a leaflet."
"As long as someone who lives down the road in the poorest area cannot afford to pay for the most expensive private care which is available, they're missing something. Someone is getting specialised care or specialised support that the other person is not getting. So that imbalance remains. "
"There are a lot of old people who don't have anyone. They come into hospital and they do not have anyone who can speak for them. And that's a scary position to be in."
"One of our ladies is a quadriplegic. She's been in palliative care quite a few times. And they basically leave them. ‘Oh, well, does it really matter?’"
"When you get doctors who have to explain, maybe, an operation, they could break that down for people with learning disabilities to make it easier for them to understand. "
"I constantly keep on reminding people, it's not only women that give birth. Non-binary people and trans men give birth. And it's not breast milk, it's human milk, and things like that. If you ever see me online you’ll be sick and tired of seeing me always on copy paste...read more
"In the antenatal period, nobody was really aware of what that might be like for a lesbian. At a time when people weren't really out about being gay and lesbian parents. "
"When you're used to a particular person handling you, you have confidence and trust. But when they say ‘You know what, my time is up and I’m going to pass you on to this next person’ you’re like ‘Oh no, first of all, I’m a minority. Secondly, how is this...read more
"The minute you hit 60, the NHS starts treating you like you're a problem. Whether you've got issues or you haven't got issues, they are the experts, you don't know anything and you have to have things done to you. And I think that's a real issue for a lot...read more
"I was just being told either ‘This is normal, you're a woman, get on with it’, or ‘This is because you're depressed and you want to be a mum, this is the way that your body is physically emanating your depression’. And I wanted to throw those operation notes in...read more
"I wish I'd put my foot down earlier. I spoke to three consultants, two white male consultants, and they said I should try a VBAC (vaginal birth after caesarean). And my mum’s also a nurse. My mum said ‘don’t let them put you through this. I lost a friend two...read more
"There's huge health inequalities for autistic women. Not just getting a diagnosis, but getting any healthcare after you have been diagnosed. Because all of a sudden everything becomes your autism, the broken leg, the scratch on your finger. It's all autism."