In depth: My experiences with disability
"The bad thing is the system of social care, to me. [Social workers] tend to mess me up and talk down to you. Or they don't treat you as a human being. So my experience is pretty bad."
"I'm the mother of twins. They're both disabled and have learning disabilities. And they're 40 this year... It's been one long struggle with health and social care. And I think the main thing is not being heard. "
"Things have gradually been going downhill with personal budgets and the understanding of personal budgets, compared to the old system of direct payments... we all know the local authorities have their own internal policies that they follow. And they're not always abiding by the letter of the law. And they...read more
"I'm still, on a daily basis, witnessing how terrible the services are for families...nothing's improved and I find that soul destroying."
"Unless you fight, people don't get the services that they are entitled to on a statutory basis. You know, as I said, the services are there. And the framework is there, but you have to fight to get them. "
"Another thing that could be better. Until very recently, where I live we had no post diagnostic support for adults with autism at all. So you go and get a diagnosis. And that will be that. You get a leaflet."
"My son went away to residential college for three years, which we had to battle tremendously hard to get for him. And I think, you know, what somebody else said about obstacles being put in your way... that was my experience at that stage. It was 'Well, nobody gets residential...read more