Health and care
"It's always been an ongoing battle. In terms of recognising that I need support. But I'm also a mother of a soon to be 15 year old boy He has a personal health budget. And we've had a personal health budget now for the last six years. Although it doesn't feel like...read more
"I'd like to see much more joined-up care for complex conditions, particularly people with multiple chronic conditions. Because my suspicion is I've only got one condition. And all the others are just symptoms of it."
"I think it is imperative that patients are LISTENED to more, whether on first presentation with symptoms or illness, or, after lengthy periods of time needing support. Detailed family stories or histories could quickly help identify additional personal risks especially if symptoms could be significant to a condition."
"Social care and health should be a service which is in the community, not in one office. Social workers should have a drop-in session every week in GP surgeries and dentists. Housing should also be in the community, as they all work together. They should all be made accountable to...read more
"The home that I work in is a private care home. So I only have first-hand experience of that. But, for me, it's the quality and the amount of care that's received in private care homes, where people are paying probably an average of about £1,500 per week to stay there. Versus what they're actually getting,...read more
"I remember in hospital on my medical notes [it said] this patient needs help to do basic needs...[But] the nurses who were looking after me, when I'd ask them for certain things they would look at me like 'Well, just get up and do it.' I mean, one got to the...read more
"Until recently there's certain conditions that they didn't even realise people of colour could have, or that don’t show up the same way as on white skin. Doctors not realising that's what they had are just totally misdiagnosing."
"We need to look after nurses and doctors or it's going to get massively worse."
"I don't think it necessarily needs loads of extra money thrown at it. I think there's a lot of money wasted. There's huge inefficiencies everywhere."
"I think social care is crumbling. I think services are woeful. And I think it's not the fault of anybody trying to provide them. If there's no emphasis on the small intervention, and the fact that people need people, rather than face less support. I think that things will only...read more
"With the death of my Mum and my Dad, the end of life care was absolutely superb... both in the professionalism of the staff but also in the sensitivity and care."
"About a year ago, I had less support than I've got now. I've had to backup to get my support in place. Because I was struggling. A year ago, I was struggling at like cooking and filling forms and reading letters."