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“Just getting a place in a care home is actually not easy. When you’re making phone call after phone call, and people say ‘We don’t have beds’ or ‘We can’t give you any more care at home.’”
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“I have an 87 year old mum who lives on her own. She hasn’t got social care, but the family looks after her. There is surely some way. We’ve got agencies like Age Concern and various others. But it’s all on the phone or on a website. And it’s very frustrating for older people who
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“We have a family friend who’s been suffering with cancer for quite a long time. And their treatment’s been put on the back burner for months now because they have to prioritise coronavirus patients. Obviously you understand, but it’s a really difficult thing when you’re looking at somebody who’s 55, and suffering from a disease
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“Unless they fight, people don’t get the services that they are entitled to on a statutory basis. The services are there, and the framework is there. But you have to fight to get them.”
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“Locally, the waiting lists are so long. Mainstream waiting lists are not appropriate for people with cerebral palsy. If you need footcare, orthotics, physio, it’s quite specialist really. You need the continuity, and you need the person with the neurological understanding to proficiently provide the service. It feels that it’s an inequitable health access and
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“Social care wise, it’s working for me at the moment. But they just want to reduce my package and expect me to pay through the nose for it. And so that’s driving me insane.”
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“I’ve got a cousin who has cancer and she needs a hysterectomy. And she has waited 11 months so far. And I’m sorry, that’s just unacceptable. It really is.”
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“In terms of more mundane interactions, I’ve almost given up going to the GP because it just takes so long to work.”
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“My dad has been in and out of psychiatric hospital and that has been challenging, accessing appropriate care for him. Both of our parents are of an age now where they’re not in care homes, but they need support. And getting that is challenging as well. I think the whole system encourages dysfunctional behaviour. I
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“Working in the homelessness sector, we have to fight to get treatments for people who are very, very ill. For mental health and addiction treatment, for general treatment or for social care. They just get missed out.”
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“A lot of people that tend to care for people with disabilites like myself are not very good at doing things like form filling. They tend to think, ‘Oh, this guy he’s up and about. He’s quite independent.’ And they forget about your other needs. And when you enquire, you don’t get the support. You get told
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“I am going to need another operation soon. And I say soon, there’s the potential that the eight month wait that I was told to expect before will now double. And therefore I am not expecting really to be living the next couple of years of my life. Well, not necessarily living, but surviving.”