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"[If] a family suddenly had to step in, which caused problems with their work, there just wasn't any help available whatsoever. Very sad, but that's the way it was. And I would phone 20 to 40 homes, trying to get help."
"For me, the most important thing with regards to the welfare of the health and social care workers is zero tolerance to violence and aggression. Because there's not a single day without being racially abused or physically abused. And nothing ever gets done about it. You report an incident to...read more
"Sometimes I will read in a magazine by a medical journalist, how carers must think of [their] own health and have a break. What a joke."
"I think a lot of people can take [the NHS] for granted because it's free. On our ward, we have a lot of rude patients that are just so demanding. And they don't realise how much it does cost the NHS for a detox or for a drain or anything like that."
"I've also been a carer while suffering from endometriosis, which was an interesting experience. I couldn't feel more like at the bottom of a run if I tried: trying to look after someone else while also being in a lot of pain."
"I started suffering with depression because my quality of life was so low. I saw multiple GPs over several months that year. None of them took my pain seriously. "
"With endometriosis, you know that so many women suffer from it. And the amount of work hours that people miss, you know, being in hospital on a monthly basis is by no means fun. And you don't want to be there. But it's the only way that you can physically...read more
"I stepped away from accessing support because that particular consultant was so hard with me. He told me if I carried on going the way I was going, I'd end up with bladder parts removed... just stepped away because I was young, I was seen as anxious. I was seen as a bother, you...read more
"Mainly, you know, I've struggled with my mental health. And so a lot of the pain I was experiencing, I was told was... to do with me. I was hysterical, I was anxious about things."
"When I asked for help, there's not the help there. Because it feels like because you're not there, when you need emergency surgery. Or because you're not on the doorstep...I just think when somebody says there's nothing more that they can do for you... what are you going to still...read more
"It took me months and months to get my appointment. And when I got to my appointment, it was only then that they told me they hadn't been able to get the results. Because they should have taken a blood test from me at the time, which they didn't do....read more
"I lost loads of faith of even being listened to about my own body.With regards to my bladder, even though I had interstitial cystitis, the consultant told me that I wasn't aware of what was happening in my body. [That] I I wasn't, in fact, incontinent. I'd mistaken my own...read more