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"The minute you hit 60, the NHS starts treating you like you're a problem. Whether you've got issues or you haven't got issues, they are the experts, you don't know anything and you have to have things done to you. And I think that's a real issue for a lot...read more
"I was just being told either ‘This is normal, you're a woman, get on with it’, or ‘This is because you're depressed and you want to be a mum, this is the way that your body is physically emanating your depression’. And I wanted to throw those operation notes in...read more
"There's huge health inequalities for autistic women. Not just getting a diagnosis, but getting any healthcare after you have been diagnosed. Because all of a sudden everything becomes your autism, the broken leg, the scratch on your finger. It's all autism."
"I've had care workers come to the house, they don't care. And I don't really mind that they don't care. I just want them to respect her. And to recognise her as an individual, with her own contributions to make."
"BAME communities are more likely to have diabetes and high blood pressure... All the options for being dual heritage are always mixed with white and never anything else. That makes me feel a bit marginalised, because even in terms of statistics I’m not truly counted, I’m only counted as ‘other’,...read more
"We should work out a way for monitoring what’s going on with coronavirus. And when Black people start dying in larger numbers than any other group, and though the NHS then starts falling over backwards to make assessments about who and what the numbers were, we still don't know why....read more
"I'm with my child who has a disability. She has Down’s syndrome. Some of you might know, she has a lot of health issues, quirky things. I've been put off taking her to the GP because generally it's ‘Well, you know, this is very typical. Yes, people with Down’s syndrome...read more
"From my experience, and from the experience of some of my friends with elderly relatives, the big thing that everyone says is that they wish they knew what was on offer and what paths they should go down."
"Locally, the waiting lists are so long. Mainstream waiting lists are not appropriate for people with cerebral palsy. If you need footcare, orthotics, physio, it's quite specialist really. You need the continuity, and you need the person with the neurological understanding to proficiently provide the service. It feels that it's...read more
"Everybody in our experience could do with some training [on treating Disabled people]. And yet there seems to be an unwillingness to be trained by those people with the lived experience. Our GP surgery could really do with some training... we've offered it but it's been ignored."
"In my area, until very recently, we had no post diagnostic support for adults with autism at all. You can go and get a diagnosis, and that will be that. You get a leaflet."
"People think I’ll see my support worker, and that will be fine. That kind of mentality is not what living with a learning disability is today or even what autism does. It’s much more independent than it was even 10 years ago. People still think that people with learning disabilities...read more