Posts
"My friend had an issue with migraines when we were at school. She used to get them really, really badly. She just had to be in bed all day. And when she went to the doctor, she got quite patronised by this male doctor. And he was telling her off...read more
"Especially for women, getting reproductive health to be taken seriously. Because my mum had to wait six months for a hysterectomy after having severe reproductive issues. And a lot of doctors didn't really take her seriously and thought that she was exaggerating her pain."
"From my experience, and from the experience of some of my friends with elderly relatives, the big thing that everyone says is that they wish they knew what was on offer and what paths they should go down."
"Locally, the waiting lists are so long. Mainstream waiting lists are not appropriate for people with cerebral palsy. If you need footcare, orthotics, physio, it's quite specialist really. You need the continuity, and you need the person with the neurological understanding to proficiently provide the service. It feels that it's...read more
"Everybody in our experience could do with some training [on treating Disabled people]. And yet there seems to be an unwillingness to be trained by those people with the lived experience. Our GP surgery could really do with some training... we've offered it but it's been ignored."
"In my area, until very recently, we had no post diagnostic support for adults with autism at all. You can go and get a diagnosis, and that will be that. You get a leaflet."
"People think I’ll see my support worker, and that will be fine. That kind of mentality is not what living with a learning disability is today or even what autism does. It’s much more independent than it was even 10 years ago. People still think that people with learning disabilities...read more
"I know in the surgeries they’ve got accessibility standards, but they’re not used. Everybody should be going back to the doctors if they're not using it. And that's a big issue. For people with learning disabilities like me, who can't read very well. "
"When you get doctors who have to explain, maybe, an operation, they could break that down for people with learning disabilities to make it easier for them to understand. "
"I constantly keep on reminding people, it's not only women that give birth. Non-binary people and trans men give birth. And it's not breast milk, it's human milk, and things like that. If you ever see me online you’ll be sick and tired of seeing me always on copy paste...read more
"The people that I support, they have been finding it really difficult to get healthcare simply because they couldn't speak the language. I'll give a scenario. A couple went to hospital to reverse an operation that took place in their home country. They wanted to have kids but instead of...read more
"Until recently there's certain conditions that they didn't even realise people of colour could have, or that don’t show up the same way as on white skin. Doctors not realising that's what they had are just totally misdiagnosing."