Posts
"Lizzie says, to her, the relationship with personal assistants is really, really crucial. The flexibility, the intimacy of that relationship and the skills and the responsibilities of that role that people have. So that she can feel safe, respected, and have choices in life."
"We had a meeting and someone from Social Services came. It was an opportunity for us to bring up our fears of growing older and what our care would look like. What we all agreed was there needed to be a special residential home for deaf people. And what’s happened...read more
"The most important thing that needs to change is for the medical professionals to stop being this institution where we're not allowed to have equal say. Because of the terminology. Because of some of the phrases they use. It's very easy to understand what the issue is, especially when it...read more
"I am taken to hospital and I ask for an interpreter. They say, 'Oh you can’t because it is the weekend.' But we need interpreters 24 hours. Why don’t they have a list of interpreters that can be contacted out of hours?"
"It's this idea of the postcode lottery...when my son was born and we started with the services here, it's actually limited us. We will not move because he's got a place in the community here. He's known and he's getting services. If we move five miles down the road, it's very different. This...read more
"About a year ago, I had less support than I've got now. I've had to backup to get my support in place. Because I was struggling. A year ago, I was struggling at like cooking and filling forms and reading letters."
"A lot of people that tend to care for people with disabilites like myself are not very good at doing things like form filling. They tend to think, 'Oh, this guy he's up and about. He's quite independent.' And they forget about your other needs. And when you enquire, you don't get...read more
"I’m battling with our county council at the moment over care charging. I feel devastated and shattered, basically."
"This system isn't funded properly, it's not recognised. It's been a bit of an add-on to the actual NHS for a century. I don't think that it's actually been good enough. There have been lots of cuts. And I'm not happy that we always have to fight for things. "
"We visited social services. They were expecting us, so they knew we were Deaf, but the staff couldn’t sign and expected us to lip-read. I was boiling inside and felt so uncomfortable. They just had no awareness. I’m not asking for anything of a high level, just someone who can...read more
"It would be nice to think that somebody could come and check in on me. Because I think there are times where I would have warranted an 'Are you actually okay?' No, I'm not. And friends may have picked up that slack. Friends who are in the community, we back each...read more