We use cookies to make sure our site is secure and to enable basic functionality. By using this site, you consent to these. We also use third party cookies to analyse how the site is used (so we can continue to make it better), to help us share relevant content with users and to enable social media functionality.
Charlotte
"It's such a rare condition. It's so misunderstood. There's not enough awareness, even amongst the medical profession that I genuinely... the only time I feel heard as a patient is when I go to London and I pay the doctor to listen."
