November 2023: Engage Britain has now merged with Demos. You can still find all our work from 2019-2023 here, but to get in touch or find out about our new ventures, go to https://demos.co.uk/
Cookies from Engage Britain
We use cookies to make sure our site is secure and to enable basic functionality. By using this site, you consent to these. We also use third party cookies to analyse how the site is used (so we can continue to make it better), to help us share relevant content with users and to enable social media functionality.
Charlotte
"It's such a rare condition. It's so misunderstood. There's not enough awareness, even amongst the medical profession that I genuinely... the only time I feel heard as a patient is when I go to London and I pay the doctor to listen."