November 2023: Engage Britain has now merged with Demos. You can still find all our work from 2019-2023 here, but to get in touch or find out about our new ventures, go to

"I think the unknowns cause a lot more anxiety and stress, which you really shouldn't be having with long conditions. Even if you're healthy, you shouldn't have stress or anxiety because it is bad for your health. So, in a way, not knowing makes everything else worse because you have that stress, you have anxiety and you have no answers to deal with it."