Posts
"Mainly, you know, I've struggled with my mental health. And so a lot of the pain I was experiencing, I was told was... to do with me. I was hysterical, I was anxious about things."
"I started suffering with depression because my quality of life was so low. I saw multiple GPs over several months that year. None of them took my pain seriously. "
"When I asked for help, there's not the help there. Because it feels like because you're not there, when you need emergency surgery. Or because you're not on the doorstep...I just think when somebody says there's nothing more that they can do for you... what are you going to still...read more
"I'd like to see much more joined-up care for complex conditions, particularly people with multiple chronic conditions. Because my suspicion is I've only got one condition. And all the others are just symptoms of it."
"He said, 'It's you just tension headaches because you have a mental health condition.' And I thought, 'This is ridiculous.' [So] I suggested that I came off a new medication that he put me on because one of the side effects was migraines. And he said, 'Oh no, it doesn't work.You're...read more
"I stepped away from accessing support because that particular consultant was so hard with me. He told me if I carried on going the way I was going, I'd end up with bladder parts removed... just stepped away because I was young, I was seen as anxious. I was seen as a bother, you...read more
"My general experience is of seeing people locally, who tell me I can't possibly have the condition I think I've got. And then fighting over several years. Eventually getting to see a specialist, usually in London, [saying I've] got what I've known for years. But can you put it on...read more
"With endometriosis, you know that so many women suffer from it. And the amount of work hours that people miss, you know, being in hospital on a monthly basis is by no means fun. And you don't want to be there. But it's the only way that you can physically...read more
"It took me months and months to get my appointment. And when I got to my appointment, it was only then that they told me they hadn't been able to get the results. Because they should have taken a blood test from me at the time, which they didn't do....read more
"I've also been a carer while suffering from endometriosis, which was an interesting experience. I couldn't feel more like at the bottom of a run if I tried: trying to look after someone else while also being in a lot of pain."
"I lost loads of faith of even being listened to about my own body.With regards to my bladder, even though I had interstitial cystitis, the consultant told me that I wasn't aware of what was happening in my body. [That] I I wasn't, in fact, incontinent. I'd mistaken my own...read more
"I knew when I ovulated because it felt like my actual stomach had exploded. But they still made out that it was all in my head. After a year of doing this, they got me onto antidepressants. They convinced me that I was depressed when actually I was in chronic pain and trying to...read more