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“Where my son’s healthcare is concerned, he’s been critically ill twice and he’s been seriously ill on many, many, many, many occassions. And for the most part of that, the care has been very good. We’ve had our ups and downs, and we’ve had times where doctors don’t want to listen. And when you’re speaking,
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“[I’ve] a couple of family members with dementia. And you know there’s something wrong with your relative. And it was so hard to get the help. And I just felt like they weren’t…nobody was listening to me. And it was getting dangerous. My uncle was wandering. He was stood in the middle of a busy road. It was so
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“Before I was diagnosed with my cancer, I was admitted as an emergency… I was treated as a drunk. And everybody said to me, ‘Oh, do you drink?’ I kept saying ‘No, I don’t drink.’ And then one of the registrar’s said to me. ‘Are you sure you haven’t got a bottle of sherry hidden underneath your sink?’ How absolutely
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“From my personal experience, just a brush with mental health issues for both me and my family members, [there] seems to be a lack of [the] personal touch at the beginning. With the first contact, like, it’s so hard to grab people that are having mental health problems because they don’t necessarily want to talk
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“They found a growth. He had to have a scan and they found this growth and they dismissed it… I had a friend who worked in the hospital… [the] senior night nurse came along, saw his notes, saw this tumor on his spine and called the consultant. Within an hour, he was on a stretcher going to
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“He got sent home to us without any conversations between us and the hospital. And without any care package being put in place for him. And that was just so very, very difficult to sort out at short notice, to get people in. And it really needed us, in the end, for a couple of days…if an
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“I’ve had postnatal depression as well. And especially when I had it with the twins, it took me a year to actually get some help. And to get some medication for it. Because my GP wasn’t listening to me and neither was my home visitor.”
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“There was a time a few years ago when I had some scans because of this lump in my neck. And basically for two weeks [I was] thinking I was gonna die. And then he was just like ‘Oh no, it’s just a cyst.’ But at no point before…did they kind of prepare me in any way.”
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“I had a car accident, about 20 years ago, which really damaged my spine. And I got support from my GP. But after about three years of struggling, his answer was to give up work and go on disability… I didn’t get offered any rehab I felt like I was just being thrown on the scrap
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“CAMHS have actually made life much more difficult for us They actually have aggravated every thing that [they] were supposed to help with. Their services are so poor.”
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“I remember in hospital on my medical notes [it said] this patient needs help to do basic needs…[But] the nurses who were looking after me, when I’d ask them for certain things they would look at me like ‘Well, just get up and do it.’ I mean, one got to the extent of [taking] me to
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“I had a sister who was in a care home. As soon as you walked in, you could smell things that you shouldn’t have. And it wasn’t her fault. I mean…she did actually [get a] room for herself, but others were put together. And it’s never been anything like the standard of the NHS. “